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Insights & Stories

Expert articles, patient guides, caregiver stories, and the latest research — written to help LSD families navigate every step of their journey.

Understanding Gaucher Disease: Symptoms, Diagnosis & Treatment
Disease Awareness

Understanding Gaucher Disease: Symptoms, Diagnosis & Treatment

Gaucher disease is the most common lysosomal storage disorder. Learn how it affects the body, how it is diagnosed, and what modern enzyme replacement therapy looks like for Indian patients.

Gaucher ERT
Dr. Manisha Goyal
7 min read
Why Fabry Disease Is Frequently Missed in Women
Research

Why Fabry Disease Is Frequently Missed in Women

Fabry disease has long been considered a disease affecting only males. New research shows women carry a significant disease burden yet remain systematically under-diagnosed.

Fabry Women's Health
Medical Team
5 min read
Navigating the Rare Disease Landscape in India
Patient Guides

Navigating the Rare Disease Landscape in India

From the National Policy for Rare Diseases 2021 to practical steps for accessing treatment — a comprehensive guide for newly diagnosed LSD families.

Policy India
Taraasha Team
9 min read
Gene Therapy for LSDs: Where Are We in 2025?
Research

Gene Therapy for LSDs: Where Are We in 2025?

Breakthrough gene therapy trials are showing promising results for Pompe, MPS-I, and Gaucher disease. We break down the science and what it means for patients.

Gene Therapy Clinical Trials
Dr. Manisha Goyal
6 min read
Caregiver Burnout in Rare Disease Families: Recognising & Managing It
Caregiver Support

Caregiver Burnout in Rare Disease Families: Recognising & Managing It

Caring for a child with a lysosomal storage disorder is deeply demanding. Mental health support for caregivers is just as important as medical treatment.

Mental Health Caregivers
Taraasha Team
5 min read
Newborn Screening for LSDs: Why Early Detection Saves Lives
Disease Awareness

Newborn Screening for LSDs: Why Early Detection Saves Lives

A single dried blood spot can now detect over 12 lysosomal disorders within 48 hours of birth. India's expanding newborn screening programme could be a turning point.

Newborn Screening Early Detection
Medical Team
4 min read

Showing 1–6 of 6 articles

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